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Indiana “Right To Try” Law To Receive Senate Hearing on Wednesday

Written on March 3, 2015 by News Release

Categories: News Archive 2015

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Five-year old Indiana resident Jordan McLinn and his family have been the face of the Right To Try effort in Indiana. Jordan has Duchenne muscular dystrophy, which will leave him paralyzed within 5 years and likely dead by age 20. There is a drug being used in clinical trials now that Jordan cannot access, but that is working for young children just like him. He parents have said they cannot afford to wait for the FDA to give the drug its final approval. He could be in a wheelchair by then, they say. (Photo provided)
Five-year old Indiana resident Jordan McLinn and his family have been the face of the Right To Try effort in Indiana. Jordan has Duchenne muscular dystrophy, which will leave him paralyzed within 5 years and likely dead by age 20. There is a drug being used in clinical trials now that Jordan cannot access, but that is working for young children just like him. He parents have said they cannot afford to wait for the FDA to give the drug its final approval. He could be in a wheelchair by then, they say. (Photo provided)

A law to give terminally ill patients access to medicines that have passed Phase 1 of the FDA approval process but are not yet on pharmacy shelves is scheduled for a hearing and public testimony in the state Senate Health & Provider Services Committee on Wednesday.

HB 1065, The Indiana Right to Try Act, is sponsored by a bipartisan group of lawmakers. The Senate Health & Provider Services Committee will hold a public hearing on the bill at 10:30 a.m. Wednesday, March 4. The Indiana State House unanimously passed the bill last month, now the bill moves to the Senate for consideration.

Right To Try laws are already in place in Arizona, Colorado, Louisiana, Michigan and Missouri. Twenty-seven states in addition to Indiana are considering the law this year. Ten of those states have already passed the law through one chamber of their Legislatures since Jan. 1.

Last week, Virginia lawmakers sent the bill to the governor on a unanimous, bipartisan vote. Utah lawmakers sent the bill to their governor yesterday. The national bipartisan effort to give terminally ill Americans access to investigational medications is being led by the Goldwater Institute.

The FDA has a process that allows people to ask permission to access investigational medicines. This “Compassionate Use” process takes hundreds of hours of paperwork and months to navigate. While many people ultimately receive FDA permission, there are dozens of documented cases of people dying while waiting on their approval.

The hearing will be at the Indiana state capitol in room 431. For more information about Right To Try contact Starlee Coleman at (602) 758-9162 or [email protected].

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